So far we have completed 234 manual hours of ABR which has helped him get this far in his upper body strength. I'm hoping that we will get him to the point of sitting independently and comando crawling in the next few months. But this moment has me super motivated to keep going. Look at this photo. His cheeks are HUGE from the steroid injections.
He is sitting so naturally with no supports. Just his hands at midline. He is also eating table food on a GFCF (Gluten Free Casien Free) diet. Here he is getting acquainted with the little girl his left. He really liked her :)!
A fellow blogger Mom calls them "inchstones". I'll take it!
Hi! My name is Kelli and I found your blog through the ABR forum. It sounds like your Aaron is similar to my Ruby. She also has infantile spasms and low tone. Unfortunately her spasms are back, but we are hopeful that starting ABR will help her muscle tone even with the spasms. Did you find that ABR helped even with seizures? We are planning on starting it in April if all goes well. I would truly appreciate your insight on any of this! Thanks for the posts on the forum. Blessings, Kelli
ReplyDeleteSorr Kelli. I just noticed your comment. Its our first one! LOL! I don't think that ABR necessarily help with the seizures but worked in spite of them if that makes any sense. The seizures originate in the brain and ABR is an external exercise applied directly to Aaron's structure. Aaron's physical problems also stem from his brain or neurological problems and that's why traditional medicine says there is not much that can be done to make any drastic changes. But ABR has been described as a "back door" approach that does not need to come through the "front door" of the brain. Hope that makes sense. Thanks for your comment. I will start checking for these now! LOL!
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